We are a group of people determined to make a difference for families affected by childhood cancer. At just over one year old, our little boy, Miles, was diagnosed with a rare illness, Langerhans Cell Histiocytosis (LCH). Even through his fight, he has a joy and love for life and being outdoors. We are eager to build awareness, help others after diagnosis and while in treatment, and strive toward supporting research for better treatments and cures. We feel strongly about empowering children and their families to support the cause. We will advocate for those who need us most - our children.
You already know you can help by hosting, offering comfort or donating.
You can also join us in helping spread awareness about Move for Miles by being a Champion or Ambassador in your local area. We need your help out in the community, telling our story and encouraging others to sponsor, partner, host and donate. See the list of options below, email us and we can get moving!
No matter how you are helping, thank you. We will create ways to contribute to those organizations that are advancing the causes we believe in. We couldn't accomplish our goals without the help of supporters like you.
Miles was diagnosed with LCH on July 7, 2016. He appeared to be a happy, healthy baby. In May of 2016, he presented with a bleeding ear. This led us on a winding path to a biopsy which confirmed his illness.
Langerhans Cell Histiocystosis is the most common of the histio disorders which occur when the body accumulates too many immature Langerhans cells. These cells can build up and cause tumors and damage organs. The cause of the disease is unknown. It is recognized as a rare disease and is treated by an oncologist.
We call him sMiles because he is full of life and love. Yet, this little boy has faced a lot in his two and half years. He is currently on his third chemotherapy protocol due to the disease progressing through two other types. The LCH started with a tumor in his head, moved to bone locations, including damaging his spine, and moved to lymph nodes and risk organs. We recently celebrated that the current chemo program, though very harsh, is working.
We know in this new world we live in, there are many things for which to be grateful and we are constantly humbled. Yet, we can't sit complacent. The treatment options are limited and the side effects can be devastating. There are few answers and many unknowns. Move for Miles was created to be a voice for all the children out there fighting for their lives and looking for answers, hoping someday, there will be better treatments and cures. We want to always be moving forward. #LetsGetMoving
Mom of Miles, Stephanie is our most passionate mover. Play has always been an integral part of her life. As an athlete and involved student in all stages of education, and as a connector and actively engaged community leader in her work, Stephanie has always believed in making a difference. She is ready to get moving through Powerful Play!
Dad of Miles, Jason is a big picture thinker and strategist with an eye for analysis. He brings an SMU Cox MBA and Fortune 50 Client Exec experience to help provide our platform for optimizing our efforts to raise awareness for the underfunded world of childhood cancer. With an athletic background, he has laser focus on how powerful play can be.
Super Siblings, these three little ones know how powerful play can be. Big brother Dylan leads the way with an enthusiasm for all play - inside, outside and all ideas. Miles is eager to follow and is discovering new ways to play all the time. He balances times at the hospital with an exuberance for time to play. Little Juliana is right there with them and ready to get moving!